©Jenny Harrod 2019

Days 5 - 7 and a Relapse (maybe)

So I have survived it past the initial shock to the system from all the IV fluids, the oral steroids and anti-emetic medications.

Certainly Monday and Tuesday were days where I felt someone had taken my batteries out and left me totally drained, so I even spent Monday in bed to try to recharge for the blood test on Wednesday.

But even so, Day 7 Wednesday, struck a cruel blow. Unfortunately our usual Blue badge parking space wasn't available so we needed to park around 100 yards from the hospital. This didn't seem to be a problem at the time and I managed to waddle as usual (holding on to the hand rails where available but unaided when not), to the phlebotomy department with Ron.

All went well until after my blood was taken. Obviously not linked to that but walking back my legs became heavy and almost stopped working altogether. It felt just like trying to walk through treacle (OK, maybe I haven't actually walked through treacle but you do all know what I mean).

I'm really worried. This was similar to what happened when my MS was first diagnosed back in 2003 and even my relapses of 2010, 2012 and 2015 didn't cause quite such disturbances in my mobility. I made it to the outside door with Ron's help and he had to go and collect the car to pick me up. 

Could this be a full blown relapse, or maybe due to the lack of regular Rebif Injections and the ineptitude of Lloyds Clinical Homecare Delivery (who I now wouldn't trust to deliver a pint of milk).

I am hoping it is just short term side-effect as we need to return to hospital tomorrow for Day 8, and another cycle of Boris Busting Gemcitabine!

Blood sugars are behaving a bit better but have had no steroids for a couple of days now and Lantus insulin seems to be relatively effective at the moment.

More tomorrow.

 

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