©Jenny Harrod 2019
So, yesterday I spent the whole afternoon talking to the lovely Community OT's who are setting things in motion for me to have some bath aids and leg lifters etc. I need to wait for their stores department to contact me before they come round to install them. I had to go through how my current weakn…
Ah, there you are, you can come out from behind the sofa now as a degree of normality is returning!
March 2020
Since my last blog the world was hit by a pandemic - CORONAVIRUS, or Covid19!
Originating in Wuhan, China this was soon killing thousands of people across the globe and there were…
So, it has been 8 weeks since my last Chemotherapy session and 2 weeks since my CT scan and I had my outpatients appointment to hear the results from my Oncologist.
Basically the news is good and 'Horace' (renamed as I don't want it to be confused with he who should never have been elected!), has…
So there we are, I survived my sixteen sessions of GemCis Chemotherapy yesterday.
I now have to wait for a CT Scan and appointment to see my Oncologist to see if 'Boris' has shrunk, or, hopefully shrivelled away completely. I won't have this until the new year and hope to feel at least a little …
Chemotherapy Cycle 6 Completed - 2 more cycles (4 treatments) to go.
So we have a General Election on December 12th and my last Chemo on December 5th so a chance to get rid of both Boris's in the course of a week!
Last week I had an appointment with a Gastorenterologist, His name was Thomas b…
Well, what a week that was, it started off with a Blood Transfusion on Tuesday, followed by the second session of my sixth cycle of Chemo. Apparently I have another two cycles to go and hopefully I shall well and truly given Boris a battering. Then today I had a much feared appointment with my Diabe…
So I had Chemo yesterday and the girls took bloods for grouping and cross matching prior to my transfusion which is booked for next Tuesday. This will be followed by a blood test on Wednesday and another session of Chemotherapy on Thursday. That will complete my Sixth cycle of Chemo out of a total o…
So what does having Chemo actually involve?
I thought this time I would explain the procedure I go through at a Chemotherapy Session. My Chemotherapy regime is based on a 21 day cycle. I have treatments on Day 1 and Day 8 and a Day off on Day 15. The day before each session of Chemo I have to…
Today was not a good day.
This morning I was especially tired and just putting one foot in front of the other was a real struggle. I had an appointment with my MS Nurse today and was really concerned that my Chemo was having an adverse effect on my condition.
My Blood pressure as usual was h…
Today was a good day as is usual the first day post Chemo so I try to get a s much done as possible. I went to both Lidl and Aldi to pick up some of their weekly special bargains, caught up with some long overdue e-mails to family and did a little online retail therapy.
The patients sharing the C…
Warning - mentions of bodily functions and smells, do not proceed if you are easily offended.
Monday 23rd September
Well, its been over two weeks and I am still waiting to hear what the CT scan showed. Hopefully I will find out this Wednesday when I see the Oncologist - fingers crossed it is g…
So last week Friday 30th August, I had a CT scan which shouldn't have been a traumatic experience but it was. Not the actual scan itself but the hour long wait before, the jug full of water I had to drink to ensure I had a full bladder, and then the additional half hour wait afterwards before they r…
Well, its officially true, pride does come before a fall and are often the results of the actions of a Fool!
I was so pleased that I had managed to keep my blood sugars below 20 whilst taking the oral steroids (Dexamethasone), that is until today. Then if you pardon the expression it all went t*t…
So, I found out at my latest outpatient's appointment with the Oncologist that my first days Chemotherapy was a low dose to see how my MS would respond and if I could tolerate it. I wish he had told me that before I started it as I thought it was pretty much an easy ride.
That said, yesterday I…
A couple of good days have been followed by a couple of days with some concerning side effects. I suspect it might be a MS relapse as I have not had any Rebif for over a week. Yet another complaint has been made to Lloyds Pharmacy Homecare Service (LPHS) who has escalated it to their actual complain…
This is probably the toughest blog post I have ever had to write, and it has taken a while as I needed to spend some time visiting family and letting them know what's going on.
Some of my Facebook 'Family' have already been following my story to a point and have been very supportive.
As alrea…
So, it looks like my fifteen minutes of fame has arrived. Having responded to a Tweet from the MS Trust about exercise and MS, I was asked to write a blog post about how swimming has helped my fitness and Multiple Sclerosis. I was asked for around 600 - 800 words, but you know me, I had to add at le…
Well, I had my appointment with the new island Neurologist on the 23rd September. Apparently my left leg is weaker than my right and I have nystagmus in my left eye. As I have had no specific relapses since 2012 but residual symptoms he said I was now moving into Secondary Progressive MS from Relaps…
Well here I am, still alive and out the other side of the relapse.
Have actually had a busy few weeks and it has taken me a while to recover.
Had just got over the worst of the relapse when we went on our Canary Island Cruise, well, I say Canary Island, in actual fact the nearest we got was Madeir…
Well, here I am again still in relapse and if anything with even worse symptoms. This is the first bad relapse I have had since my diagnosis in 2003 and is following the same sequence of symptoms (except my fingers and hands/arms are not currently any worse than normal)
I am still wearing the wrong…
Sal
August 18, 2014
Hallooooo! I love the background colours - so soothing for my dyslexic eyes! I love the poem too - she's very talented! I'm so glad you're doing this - I'm sure it'll help a lot of people. xxx
