©Jenny Harrod 2019

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A busy but productive week and maybe too much information ...?

Well, I am getting better at writing this blog aren’t I even if it is 4 30 in the morning!

Admittedly my life seems to be based on musings from the early hours when my mind is at its most active, aside from my bladder of course.

Poor Ron is still waiting for the accident and insurance c…

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Possibly the worst week of our lives!

Disaster both human and vehicular

So, I cannot go into too much detail here as there is a disputed claim by the other party involved but Daphne might well have been written off. Poor Ron was involved in a RTA at Smallbrook Junction Roundabout (people on the island will know where that is.

He h…

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2 days post another transfusion (still shaky though)

Thursday 2nd July

So, I had to have another 2 units of blood on Thursday, fortunately this was in the Chemo Department amongst the staff that I see as my second family and I know are experts in their field.

This was not without issues though, firstly I was so weak it took several attempts to …

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Oh no. this does not look good.

So, yesterday I spent the whole afternoon talking to the lovely Community OT's who are setting things in motion for me to have some bath aids and leg lifters etc. I need to wait for their stores department to contact me before they come round to install them. I had to go through how my current weakn…

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Scary, and all for the sake of a blood sample!

Well, I was full of good intentions to ring the Community OT but events overtook me.

Firstly, my car 'Caz', wouldn't start. I expect that as she has been sat in the front drive for almost 3 months without moving she felt a bit unloved. Actually, it was simpler than that - a flat battery. But of c…

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Shielding (and Lock-down) is coming to an end...

4th June

Telephone consultation with my MS Neurologist. I explained my worsening MS symptoms and how I thought it was a progression of the disease. He agreed up to a point but was more convinced that it was due to my anaemia coming back (remember I had a transfusion last month). My GP had not dow…

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What the hell just happened?

Ah, there you are, you can come out from behind the sofa now as a degree of normality is returning!

March 2020

Since my last blog the world was hit by a pandemic - CORONAVIRUS, or Covid19!

Originating in Wuhan, China this was soon killing thousands of people across the globe and there were…

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Update and contact with Macmillan Nurse at last!

Have spoken to my Nurse and she has been and discussed me with my Oncologist - he is going to try and bring my scan date forward and wants me to have a blood test.

Also need to increase my omeprazole dose and get some more metoclopramide (anti sickness) pills that I was on with my Chemo. I have m…

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This does not look good!

So, at least I now know I am not going mad, but the symptoms I am experiencing are not just real but are indicative of having liver cancer.

I was diagnosed with it a year ago and was at that point asymptomatic.

Now, after 16 sessions of Chemotherapy over last summer/autumn, and a scan …

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The results are in...

So, it has been 8 weeks since my last Chemotherapy session and 2 weeks since my CT scan and I had my outpatients appointment to hear the results from my Oncologist.

Basically the news is good and 'Horace' (renamed as I don't want it to be confused with he who should never have been elected!), has…

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What a few weeks these will be!

Well these next few weeks will be a bit of a turning point in my MS and Cancer journey.

Yesterday I had my CT Scan with contrast, scanning my chest, thorax and abdomen. This was a much much better experience than the one in August when I felt the Radiographers were newly in post and had very lit…

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Wow, where has my energy gone - I thought it was all over now!

OK, only a very short blog today as I have absolutely zero energy, and I cannot keep my eyes open as well as suffering waves of nausea.

I had hoped to update this a few days ago, but for reasons best known to themselves Jigsy (my Webhost) had problems and I was unable to access my website.

I c…

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Well, that's that then-Chemotherapy complete!

So there we are, I survived my sixteen sessions of GemCis Chemotherapy yesterday.

I now have to wait for a CT Scan and appointment to see my Oncologist to see if 'Boris' has shrunk, or, hopefully shrivelled away completely. I won't have this until the new year and hope to feel at least a little …

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The end is in sight - in reflective mood

So, here I am again. The difference this time is that the end is in sight. No not Brexit, but my Chemotherapy.

It doesn't seem possible that it was July that I first started the Cytotoxic Drugs, being hooked up to the infusions for two out of three weeks with a recovery week every third week, and…

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A quiet but uncomfortable week.

Chemotherapy Cycle 6 Completed - 2 more cycles (4 treatments) to go.

So we have a General Election on December 12th and my last Chemo on December 5th so a chance to get rid of both Boris's in the course of a week!

Last week I had an appointment with a  Gastorenterologist, His name was Thomas b…

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An eventful week - but some good news to end on!

Well, what a week that was, it started off with a Blood Transfusion on Tuesday, followed by the second session of my sixth cycle of Chemo. Apparently I have another two cycles to go and hopefully I shall well and truly given Boris a battering. Then today I had a much feared appointment with my Diabe…

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Have you though about becoming a Blood Donor?

So I had Chemo yesterday and the girls took bloods for grouping and cross matching prior to my transfusion which is booked for next Tuesday. This will be followed by a blood test on Wednesday and another session of Chemotherapy on Thursday. That will complete my Sixth cycle of Chemo out of a total o…

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The end is in sight but a hurdle to cross first!




So today I saw my Oncologist, who (aside from the fact said I should see a Dentist about my wobbly lower front tooth), at last explained how long my Chemo will go on.

Apparently I should finish at the end of November after a total of Eight Cycles of Chemotherapy, with each Cycle…

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So what is it like having Chemo?

So what does having Chemo actually involve?

I thought this time I would explain the procedure I go through at a Chemotherapy Session. My Chemotherapy regime is based on a 21 day cycle. I have treatments on Day 1 and Day 8 and a Day off on Day 15. The day before each session of Chemo I have to…

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Note to self - Think Hypo First!

Today was not a good day.

This morning I was especially tired and just putting one foot in front of the other was a real struggle. I had an appointment with my MS Nurse today and was really concerned that my Chemo was having an adverse effect on my condition.

My Blood pressure as usual was h…

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