OK, 'Treacle Legs' - a term I suspect everyone with MS can relate to. It's like walking through treacle with legs being heavy and a fear they will give way completely. Certainly not an excuse for high blood sugars!
Really upset they hit today though, I had rested this afternoon in readiness to go to Disabled Swimming Club this evening but I just hadn't got the strength to even drive there let alone swim. Devastated as I was really looking forward to meeting the gang and getting some much needed exercise. Never mind, I have no Chemo or blood tests this week so should definitely be well enough to go next weeek.
I am of course back on the oral steroids now again for 3 days which as suspected are playing hell with my blood sugars again - if it's not Hypo's its High readings. I am trying to titrate my Novorapid insulin according to what I am about to eat and doubling the units to allow for the steroids too. I had hoped to keep the weekend readings down to below 15 but it is proving a step too far and I have already had a reading of 17.3 mmols.
Somewhat annoyingly this time the steroids seem to be making me hungry, and I have just devoured a huge Ploughman's lunch - mostly cheese and paté but of course there had to be some carbohydrate rich crusty bread with it. It was certainly the largest meal I have had for months but I am hoping that it will just be while I am on the Dexamethasone as having taken so much time and effort to lose the weight I am DEFINITELY not going to put it all back on again. Plus I have just got some lovely new Maxi dresses in size 18 and am planning a cull in my wardrobe of anything over a size 22 to make room for them!
So what will the next few days bring? If it follows the same pattern as before, I am expecting 2 - 3 days of feeling a bit shaky and unsteady with possible bouts of Treacle legs (sounds like a weather forecast!). Whether this means I will be able to venture out on 'JenHur' or not I don't know, but I will certainly not be up to driving for a couple of days at least. I have stocked up on essential shopping in readiness. Hopefully, as I am now back taking regular Rebif again the MS symptoms at least won't be too bad or last too long, but, and I am now increasingly becoming aware, this dizziness and unsteadiness could also be masking the other demon I have to cope with - Diabetic Hypogycaemia so I have to be ready with plenty of blood testing strips. I am using an App on my phone to keep track as well as a spreadsheet to monitor my readings and insulin doses.
Even my Diabetic Nurse is surprised I had a Hypo in the Phlebotomy department but as I am now aware that there is no lingering of the steroids once the final tablet has had its effect I know to definitely avoid any insulin at breakfast time on Monday. She is ordering me a second Glucometer so I can keep one in my handbag in case of any future issues while we are out and I also have a load of Dextrose tablets in a vareiety of flavours too. I will soon need a wheelbarrow not a handbag!
OK, enough for now. Off to bed now to digest my dinner and take my dreaded steroids and other medications.
More news as it happens - thanks for taking the time to read this if you are still here! xx
