©Jenny Harrod 2019

Blog posts

Days 5 - 7 and a Relapse (maybe)

So I have survived it past the initial shock to the system from all the IV fluids, the oral steroids and anti-emetic medications.

Certainly Monday and Tuesday were days where I felt someone had taken my batteries out and left me totally drained, so I even spent Monday in bed to try to recharge fo…

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Days 2, 3 and 4 (dizziness and some minor mishaps)

A couple of good days have been followed by a couple of days with some concerning side effects. I suspect it might be a MS relapse as I have not had any Rebif for over a week. Yet another complaint has been made to Lloyds Pharmacy Homecare Service (LPHS) who has escalated it to their actual complain…

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The journey begins - ironically on Independence Day!

OK so I have reached Day 2 of the 21 day Chemotherapy Regime.

Day 1 Wednesday 4th July

Admitted as a Day Case to the Chemotherapy Department at St Mary's Hospital. First I was weighed to ensure that I wasn't in fluid overload at the end of the session - I needed to weigh no more than 2 kg abov…

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Giving it the Needle!

OK, so I have now been on Insulin for a week and it is actually beginning to have a little effect on my blood sugars at last.

Having started on 8 units at bedtime on Monday, I am now up to 14 units and my waking blood sugar is almost at optimal levels ( 5 - 7 mmols). My lovely Nurse Helen, is ha…

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Taking back some control!

So, yet again I found myself in tears with my lovely Diabetic Practice Nurse, Helen. I have built up a special bond with her since I moved here. I found it very difficult to surrender myself to the role of a patient, having always been the one 'dishing out information and performing Practice Room tr…

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... I shall call it Boris!

This is probably the toughest blog post I have ever had to write, and it has taken a while as I needed to spend some time visiting family and letting them know what's going on.

Some of my Facebook 'Family' have already been following my story to a point and have been very supportive.

As alrea…

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Was it a sign?

Now, as some of you will already have read, when I ordered my new Motability Car - a Ford Kuga, I named it Caz after my best Nursing Friend who passed away far too young from Breast Cancer on the same day I ordered the vehicle. I thought 'Caz the Kuga' sounded good.

Today, literally after my onco…

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Cruised the Fjords

So, we had our cruise to Norway on the Saga Sapphire, and at least I enjoyed it. Him-in-the-Shed pretty much decided before we went that he wasn't going to have a good time, although I actually chose that cruise with him in mind because of his interest in the 1940's and WWII.

He moaned about wait…

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Making a SPLASH!

So, it looks like my fifteen minutes of fame has arrived. Having responded to a Tweet from the MS Trust about exercise and MS, I was asked to write a blog post about how swimming has helped my fitness and Multiple Sclerosis. I was asked for around 600 - 800 words, but you know me, I had to add at le…

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Trips, Falls and Liver Scans

Well, it has been an eventful few weeks, including a couple of falls and an abnormal blood test that has concerned my Neurologist enough to request a Liver Ultrasound Scan - one of my MS Nurses called to let me know earlier today. Of course it might be said that anything Him-in-the-shed can do I can…

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New set of wheels!

Well, I can't believe it but I have now had Hettie the Skoda Yeti for 3 years.  I get to choose a new car from Motability every 3 years as I receive the Higher Rate Mobility component of Personal Independence Payment (PIP). I am eligible for it because my mobility is often limited due to my MS.

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So here we are in 2019

Wow, how did that happen? Three years have flown past and this Autoblography website (that I had forgotten about) came back to, well, haunt me isn't really the term I need.

I received an email out of the blue from a lady called Selina from the British Science Museum regarding some Iron Lung Ventil…

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Remember this?

Hello, yes I am still here and alive and well (sort of!)

At the end of 2009 and part way through my 50th year I posted the following blog post. I don't imagine any of you will have been with me since then but you never know. In my next post I will update you on what if any progress I have made ov…

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Hooray completed the swim!

At last I finished my round the island swim. It took 82 sessions to do the 65 miles but the Swim Britain site didn't even offer the chance of printing off a certificate. I would have liked that, it would have been evidence of my achievement. Never mind the record stays on the website.

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Well there's good news and bad news!

Well, since I last blogged a couple of things have happened. I applied for a job as a Service Co-ordinator with the British Red Cross and actually got called for interview. OK I didn't get the job but the very fact that I  was interviewed helped me to realise I have skills and knowledge that could p…

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Maybe just one more year?!

I have had some thoughts, well, after some discussion with my Diabetes Nurse at the Surgery and my MS Nurse and Continence Nurses at the hospital, and I have decided to hold on to my registration for one more year. It has been suggested that I would be an ideal triage nurse to work at the NHS 111 hu…

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But I need to go now!!!

Just a quick post to say I saw another specialist Nurse today for the delights of a bladder scan.

A recent issue is that of urinary urgency with occasional incontinence, I know I'm sorry if you are eating your tea! It is a problem a lot of ladies suffer from not just those with Multiple Sclerosis -…

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Keep taking the tablets

Well, I had my appointment with the new island Neurologist on the 23rd September. Apparently my left leg is weaker than my right and I have nystagmus in my left eye. As I have had no specific relapses since 2012 but residual symptoms he said I was now moving into Secondary Progressive MS from Relaps…

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A momentous decision and New Chapter?

Well it has finally happened - the momentous decision to no longer renew my registration with the Nursing and Midwifery Council when it is due in November, and officially call myself retired. It is breaking my heart to do so as it means that I can longer be employed in any capacity as a qualified Nu…

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Getting there!

Well, I am still swimming 'around the island' and until the school holidays started I was going 3 times a week. I never thought that I could enjoy exercise but miss not being able to go swimming when the pool is full of children, either islanders or holidaying 'grockles'.

To this end I have now sta…

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20 Blog Posts